Don't forget to share our stories by following & forwarding our blog, following us on Twitter, Facebook and Tumblr @ Bellabenefit and Like us on Facebook.com/bellabenefit! The more people who are aware of SMA, the less babies are born with SMA, together we can make a difference and find a cure! Help us spread our stories and get a routine prenatal testing for SMA to happen!
This is it! The EVENT we have all been waiting for! Please come out and help support a great cause! You will not be disappointed!!!!!!!!!!!
Click on this link below for all details:::
https://www.facebook.com/events/301204696626043/?ref=nf
Please share our blog after reading this and help us spread awareness about this horrible incurable disease. No one should ever have go to thru a horrible tragedy like this. We would like the world to know that a genetic testing for this disease should be mandatory to all expecting mothers!
Bella Benefit. Benefiting Families Affected by SMA: We are all connected in a very Unique way! Our daughter is now sweet angels taken by a horrible incurable disease called Spinal Muscular Atrophy, SMA type 1. Meet Addison Bella. SMA is a rare genetic disorder, babies born with this only have a life expectancy of age 2. Help us to spread our stories and make this world aware of this awful disease!!
Monday, June 25, 2012
Tuesday, June 5, 2012
Register for our upcoming 5K!!
Don't forget to share our stories by following & forwarding our blog, following us on Twitter, Facebook and Tumblr @ Bellabenefit and Like us on Facebook.com/bellabenefit! The more people who are aware of SMA, the less babies are born with SMA, together we can make a difference and find a cure! Help us spread our stories and get a routine prenatal testing for SMA to happen!
WE ARE UP AND RUNNING! Here is the link to our upcoming 5k/ 1 Mile Fun Run! Here you will be able to register, donate and get teams started (if you wish to make a TEAM)!
Hope you all will support us and come out to OUR 1ST ANNUAL 5K BENEFIT!!
http://www.fsma.org/bellabenefit
Please share our blog after reading this and help us spread awareness about this horrible incurable disease. No one should ever have go to thru a horrible tragedy like this. We would like the world to know that a genetic testing for this disease should be mandatory to all expecting mothers!
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